Thursday, September 17, 2015

Low Iodine - What are the "rules?"

The low iodine diet for thyroid cancer treatment is extremely hard to stick with, all the more so because there is no consensus on how long to stay on it or what foods are forbidden/allowed. Iodine isn't one of the nutrients marked on food labels, and no list exists anywhere with actual numbers for common foods. THYCA's list isn't the same as the Sloan-Kettering Cancer Center, and neither of those matches the NIH guidelines or the Mayo Clinic. Beans are a no-no. Beans are just fine. Soy is forbidden, but tofu is OK if your a vegetarian. Stay on it for 4 weeks pre-ablation or test. No, only 1-2 weeks is necessary for a good result.
The uncertainty is maddening, particularly because it is your health - and your life - hinging on accurate results. I don't want to be told that all fruits and vegetables are fine in any quantity, then get a false negative because I ate too many strawberries or too much broccoli.
I found and bookmarked this blog post a few years ago,  because it (and the comments) expressed much of what I was feeling about the experience of living with this cancer and coping with the diet. Treatment for thyroid cancer is isolating and frustrating. The lack of good information only adds to the frustration.

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